Adam has had a rough go of it the last few months. He's always been my happy-go-lucky kid, even after his diabetes diagnosis. Lately, he hasn't been so cheery. He's been sad, mad and angrier than I've ever seen him. Maybe it's being 5 years old. Maybe it's not.
We saw his pediatric ophthalmologist for his bad eye last week and got some bummer news. He has lost some of the vision he has gained in that eye in the last year. Why? Because with the diabetes diagnosis, we let patching slide. There are only so many things in a day that I'm willing to fight my kid on - and diabetes came first. He's been patching since he was 9 months old, and frankly...I didn't have the extra energy to force him to wear a patch that he hated for 2 hours a day.
Well, guess where that got me. He went from 20/40 vision in his contact lens eye to 20/60. His doctor was NOT pleased and has ordered patching for 5-6 hours a day, plus another exploratory vision check under anesthesia scheduled for January.
Now, in addition to having issues with diabetes lately, and being just plain upset about it, he's mad and angry at me for forcing him to wear a patch for all of his waking hours when he gets home from school. He's PISSED.
As in me chasing him around the house, having Jason hold him down while I put a patch on, having him rip it off over and over until he succumbs to his fate.
He doesn't want to be a kid with diabetes who wears an insulin pump that everyone can see.
He doesn't want to be a kid who has to wear a contact lens and a sticky, annoying eye patch over his eye for 5 hours a day.
He doesn't want to be different. He just wants to be a kid.
With that said, we are embarking on a new adventure, mostly because he wants it. And nothing else has made him happier since he tried on the Omnipod last week.
We met with the rep last week, who came over and discussed the Pod with me, my husband and my parents. We all asked questions, we all got to test it out. We did an actual insertion on Adam and boy, did he think it was cool. And as an added bonus, he seems to think it doesn't hurt as much as the Insets.
Am I nervous? Hell yes. Have I had second thoughts? Absolutely. I've been awake at night more often than usual worrying about this. About re-training myself. About re-training the nurses at school (I feel totally guilty about switching pumps on them now that they just got the hang of the Ping.) I even got to chat with Hallie on the phone and she answered ALL my questions about switching from the Ping to the Pod. :)
Thankfully, I have the comfort of knowing we still have the Ping and can go back to it if we want to.
But, I am willing to sacrifice a few things for a happier kid. There are so many things about his life that I cannot change. I have to tell him way too often, "I'm sorry...you don't have to like this, but you HAVE to do it."
I'm also hopeful that the fact that it is more user-friendly will allow me to get "out" a bit more. My mom thinks it is so much easier to use, and since she is our only babysitter...well....that rocks.
So, I hope you will all hang with me as we begin this new adventure. We got the go-ahead from his endo yesterday, (after a lecture on how "the grass is not always greener on the other side!") the paperwork is in, and now we just wait for our pods to arrive and schedule training.